Look out for our collab!
BWV has partnered with Because She Cares, a community-based collaborative that showcases poetry and spoken word performances about the lives, intersections, experiences of ACB women living with HIV through play and film.
We will be dropping 12 films based on spoken word stories by ACB women living with HIV on our Mighty Networks community. After the release of films, we invite ACB women living with HIV to share their thoughts, feelings and experiences around watching the films.
“The greatest challenge is between diagnosis and acceptance.”
Video Resources
HIV Journey & Acceptance
#IAmStillMe: My HIV Story - Nozibele Qamngana
Description: Nozibele takes us through her journey of being diagnosed from pre-test counselling and waiting for her results to questioning, denial and depression and eventually, acceptance.
Why we like it: Nozibele describes “living positively” and emphasizes that she is bigger than her diagnosis with the #IAmStillMe hashtag.
Length: 11:41 minutes
My HIV Story - Shadawn McCants
Description: Shadawn recounts her experience of being diagnosed with HIV as a 17-year old. Shadawn talks about trusting her intuition and spirit and advocated for herself to get testing.
Why we like it: “I didn’t look like HIV. I didn’t feel like HIV. But that was my truth, that was my story.” Shadawn prioritized choosing to live and live well, but is very transparent about how guilt, shame and fear worked their way into her journey.
Length: 16:36 minutes
FACES of HIV: Renee’s Story - wemakethechange
Description: The Faces of HIV project examines the effects of stigmas, the personal relationships and care issues associated with being HIV positive.
Why we like it: Renee is very transparent about her story and how it relates to the criminalization of disclosure.
Length: 6:41 minutes
I Had HIV for 19 Years and Didn’t Know - Vice News
Description: Janet Arinaitwe was born with HIV but didn’t find out until she was 19 years old. She talks about being a mom living with HIV who was born to an HIV-positive mom unknowingly. Janet shares the steps she took to deliver healthy, HIV-negative children of her own.
Why we like it: Janet identifies as a mother living with HIV, and so this interview encapsulates the intersections of being a woman, mother and partner and how she is deserving of love, children and pleasure.
Length: 6:41 minutes
“I was infected with HIV at birth” - Saidy Brown
Description: Saidy talks to Nozibele about her journey of learning she had HIV at 14 years old and challenging herself to tell a teacher she was close with and finally allowing herself to feel her feelings.
Why we like it: You know we love Nozibele! This interview exhibits community and peer support as these ladies discuss Saidy’s journey.
Length: 41:03 minutes
My HIV Story - Saidy Brown
Description: On World AIDS Day, Saidy recounts her understanding of HIV as a woman born with HIV.
Why we like it: Saidy dismantles the idea that HIV is associated with sex.
Length: 26:09 minutes
Living with HIV - Doreen Moraa Moracha
Description: Doreen Moraa Moracha discusses her involvement in HIV/AIDS initiatives as a young woman living with HIV in an attempt to inspire and change the world of HIV. As a woman living with HIV, Doreen sees HIV as “just a health condition.”
Why we like it: Doreen is the founder of I Am a Beautiful Story, an HIV/AIDS initiative meant to create awareness, give hope and give face to people living with HIV.
Length: 26:09 minutes
HIV - My Story - Florence
Description: Florence discusses finding out she was HIV-positive while pregnant, after a test she initially refused.
Why we like it: “HIV does not discriminate.” Florence candidly speaks to the reality of HIV, negative reactions to disclosure and getting rid of her own stigma around HIV after being diagnosed.
Length: 26:09 minutes
Women and AIDS – Surviving Voice - Gina Brown
Description: Gina tells an intense story about child molestation, teen pregnancy, drug use and HIV and where she is now. Gina recounts advise given to her by a nurse: take your medication as prescribed, go to your doctor’s appointments and learn all you can about HIV.
Why we like it: Gina’s story emphasizes how criminalization of HIV in some USA states is associated with stigma and how little support women get in their HIV journeys.
Length: 26:09 minutes
Sex & Relationships
Couple Series: My Partner is Living with HIV - Pinki Manong
Description: Johnny and Mamatlali Motebang share their journey of meeting, becoming a couple and getting married. Mamatlali found out about her diagnosis while engaged, and the couple discuss how they went about their relationship after diagnosis.
Why we like it: Johnny and Mamatlali Motebang represent discordant relationships and display what support after diagnosis looks like.
Length: 26:09 minutes
#MayabaLoveJourney: Reflecting on the day I disclosed my HIV status to my husband -Nozibele Qamngana
Description: Nozibele told her husband she was HIV positive a month after they met in hopes that he’d leave her alone. Instead, they’ve been married for 6 years. The couple discusses acceptance around illness, rape and love.
Why we like it: Nozibele invites her husband to share his recount of being told his partner was HIV positive and how he sees his wife separate from the virus.
Length: 22:48 minutes
HIV and Sex: Why your sex life doesn’t have to be boring - Nozibele Qamngana
Description:
Why we like it:
Length: 18:22 minutes
When do I disclose my HIV positive status to my partner? - Nozibele Qamngana
Description: Nozibele answers the question she often gets about when to disclose to a partner or potential partner. She advises people to consider why they want to disclose, what outcome do they anticipate and what that outcome would mean for them.
Why we like it: Nozibele highlights her privilege in experiences of disclosure having never been rejected by someone she told while understanding disclosure is a person’s choice.
Length: 14:31 minutes
HIV & Contraceptives | I don’t use any - Nozibele Qamngana
Description: Nozibele goes through a review of contraceptive methods that can be used while taking ARVs and talks about her personal experience with contraceptives.
Why we like it: Nozibele discusses engaging in unprotected sex and the consequences and ways of managing these practices.
Length: 19:07 minutes
Mental Health
HIV & Mental Health - Marnina
Description: Marnina discusses how her mother’s support helped her address her depression, anxiety and HIV and advises having a healthcare team as necessary for starting treatment.
Why we like it: Marnina emphasizes the importance of mental health support in HIV acceptance.
Length: 0:45 minutes
Parenthood & Family
HIV & Children: Should I tell them? It gets a little emotional - Nozibele Qamngana
Description: In an emotional personal story of her cousin’s passing and taking in her cousin’s children, Nozibele talks about the challenge of talking about HIV with children.
Why we like it: A commenter says “The beauty of disclosing to them is that they will know how to protect themselves” about telling children about their parents or their own HIV status.
Length: 26:33 minutes
Kids Meet a Person Living with HIV | Kids Meet - HiHo Kids
Description: HiHo Kids brings in Trinisha, a woman living with HIV, who was born with HIV and told when she was 7 years old, to discuss HIV. The conversation brings in some insight about how to talk to kids about HIV and reveals that kids are more knowledgeable and curious than we may believe.
Why we like it: The kids ask really good questions about discrimination, stigma, disclosure, dating, family planning and mental health.
Length: 5:47 minutes
HIV and Family dynamics: What did our in-laws say?- Nozibele Qamngana
Description: Nozibele addresses how her and her husband’s families are involved in their life and her HIV journey and acceptance.
Why we like it: Nozibele talks about wanting to use her story for good and inspiration and how disclosing to her family was part of that desire.
Length: 29:43 minutes
LGBTQIA+
HIV, dating and relationships - Saidy Brown
Description: Saidy shares her experiences of disclosure in relationships. Saidy admits lying about the age she found out about her diagnosis and how this relates to fear of rejection.
Why we like it: Saidy is candid and funny in her recollection of her past relationship. She discusses internal stigma despite being in relationships with people who accepted her.
Length: 12:05 minutes
Black. Gay. And Living Positively with HIV (Introducing Phenyo)- Nozibele Qamngana
Description: In this video, Nozibele interviews Phenyo who discusses his HIV journey.
Why we like it: Nozibele facilitates a safe space for Phenyo to share his life story. They have incredibly open, friendly conversation that is fun to watch.
Length: 46:38 minutes
Treatment & Primary Care
HIV and Opportunistic Diseases - Nozibele Qamngana
Description: Nozibele discusses her understanding of opportunistic diseases and well-being and how to adjust to have a healthier lifestyle.
Why we like it: As seen in the comments, Nozibele’s channel is watched by HIV-negative Black women because of topics like this.
Length: 14:20 minutes
My Journey with ARV’s - Saidy Brown
Description: Saidy brings a lighthearted energy to talking about taking ARVs.
Why we like it: Saidy jokes about her journey with ARVs being her longest relationship.
Length: 11:29 minutes
How to manage ARVs Side Effects | what are ARVs Side Effects - Sharon Machethe
Description: Sharon, a woman born with HIV, talks about taking “the smarties” and the challenge of managing side effects and opportunistic infections while living with HIV.
Why we like it: Sharon bravely shares how she managed a number of side effects in a very candid, personal account of her experience with ARVs.
Length: 12:15 minutes
My journey with ARVs - Nozibele Qamngana
Why we like it: Through sharing her story, Nozibele highlights the importance of consistency in treatment and the need to be mentally prepared to begin treatment. She also emphasizes treatment as a choice.
Why we like it: Nozibele speaks about advocating for herself when advised by her doctor to start treatment when she wasn’t yet ready.
Length: 36:47 minutes
Self Care
How to Self Care for Anxiety & Depression SYMPTOMS- Dr. Nina
Description: Dr. Nina talks about ways to care for self, even when you don't feel like it and when you are down. She shares time management tips, ways to increase self-confidence, how to reduce stress and positive mental health tips.
Length: 15:24 minutes
What I Eat As a Person Living with HIV- HIV & Nutrition- Doreen Moraa Moracha
Description: Doreen Moraa Moracha talks about the importance of nutrition and eating while showing meals she’s made for herself.
Length: 26:09 minutes
Jessamyn Stanley's 8-Minute Yoga for Self-Love | Health- Health Magazine
Description: Body-positive yogi and Every Body Yoga author, Jessamyn Stanley, hosts an 8 minute yoga flow.
Length: 8:07 minutes
Couch Potato Yoga | 10 Minute Yoga - Jessamyn Stanely
Description: A 10-minute yoga class you can do from your couch.
Length: 12:24 minutes
Morning Affirmations for Black Women (Repeat After Me)- Janika Bates
Description: Everyday morning affirmations for Black women presented in a way for you to repeat after me.
Length: 10:11 minutes
5 Minute Morning Meditation for Black Women- Haven Inspired
Description: A quick 5 minute meditation for Black Women, best to do in the morning.
Length: 5:38 minutes
Audio Resources
The Spread - Karen Kaz Lucas
The Spread is a safe and loving space for expressing sexuality without judgement. Kaz hosts a talk about and with SAFE Kenya, an organization changing discussion and intervention around sex education.
Check out The Spread for all things sex, including sex work, polyamory, orgasms and so much more.
RW Living positively with HIV - Children’s Radio Foundation
Children’s Radio Foundation interviews Saidy Brown, a young woman born with HIV. Saidy speaks about the unfairness of the notion that HIV is linked to sex and promiscuity.
Check out Children’s Radio Foundation for more information about HIV, mental health, and youth opinions on a number of topics.
Ending AIDS, The Story of Akosua Mansah - Thomas Tetteh
Thomas Tetteh narrates the story of Akosua Mansah and her journey in finding out she was positive, getting married, having a child and living positively. Tetteh and Mansah speak to the importance of taking medication in reducing one’s viral load.
Living with HIV - Power FM 987
Power FM 987 hosts a Power Talk on World’s AID day (2015) with a woman living with HIV named Anne.
Ms Gifty Torkornu shares her story - Ghana AIDS Commission
Details Ghana’s fight against HIV/AIDS in an interview with Gifty Torkornu, an HIV/AIDS advocate since 2009.
Precious Kanika shares 13+ years of living with HIV/AIDS - Children’s Radio Foundation
Precious discusses her story and understanding of confidentiality, disclosure, stigma and more. Precious shares why she’s so comfortable speaking openly about her positive status.
Two mothers living with HIV share their clinic experiences - UNAIDS Caribbean
Women speak about their experiences being pregnant and having children while living with HIV. Furthermore, they speak about their worries about disclosure and stigma and the judgment they faced from nurses and doctors.
Check out UNAIDS Caribbean on Soundcloud for more personal and informative podcast episodes.